As some of
you are aware, over the past few months we've been pouring our heart and
soul into creating a lasting legacy for our sweet girl. I'm proud to
announce the development of The Sadie McCann Fund - a memorial fund established in Sadie's memory to benefit families of children with Aicardi Syndrome.
The motivation behind this Fund - besides honoring Sadie's memory - was a stark realization that we have been so incredibly blessed as we navigated this diagnosis and its associated challenges - blessed to have a strong support system, blessed to have the financial means for one of us to take an extended leave from full-time work, blessed to have the ability to find the resources we needed, blessed in so many ways. This realization comes with knowing that others do not have the same means and resources available to them - which can make navigating life with a chronically ill child much more difficult.
We
will be raising funds over the next few months and plan to award grants
to our first group of families in the Spring of 2017. If you are so inclined
to make a year-end charitable donation to the fund, we would truly
appreciate your support. Please feel free to share the website with
friends and family and on social media. We will also be continuing
fundraising efforts at our annual spring "Celebrating Sadie" event.
