Wednesday, September 22, 2010

Sadie the fashionista. Status quo.

A few times a week, Sadie and I put her clothes away in her closet. As I hang each outfit, I hold it up to ask her if she likes it. This is also my way of checking if the clothes still fit, as she tends to grow out of them very quickly. Although she can't verbalize it, I think she really enjoys this time, and will often smile as I show her certain outfits. Thanks to her fashion-forward aunts, as well as friends hand-me-downs, she has more clothes in her closet than Mommy!

In other news, Sadie's seizures are still on the high end. She is now having between 7-9 clusters of seizures a day, mostly occurring right after she awakens from sleep or a nap. We continue to work with her neurologist to tweak medications and diet ratios to see if we can gain more control of the seizures, but so far nothing seems to be working. I can't tell you how frustrating it is to see no improvement.

We also saw a new ocularist this week, who fitted Sadie for her third (yes, third) conformer. He taught us how to put the conformer in her eye, as well as take it out. It is challenging to put a prosthetic in our baby's eye every day, but we're getting the hang of it!

We close on the new house this week, and are very excited to finally be settled. We'll also get to unpack all of our boxes that have been packed up since the move out of our home in Charlotte. It will be like Christmas...almost.

Thanks to everyone for the prayers and good thoughts. Keep them coming!


  1. love the fashion comments - what size is she wearing these days?

    - Carolyn

  2. You need to have her watch Project Runway (on Lifetime)...she'll LOVE it!